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About Us

Fighting HARD Foundation became an official 501c3 organization in August of 2015 after tirelessly searching for a foundation that our daughter could be a part of where people understood what she was going through. When we were not able to find one, we decided to create an organization of our own where we could bring children of the rare disease community together to help them know they were not alone in their battle, by raising awareness and funding for programs that would help make HARD life a little easier.

The Heart and Soul of the Foundation are these two amazing little girls who fight HARD every day!

Alexandra 14 years old

“Hi! I’m Allie and I have been battling many diagnoses for many years, including Crohn’s Disease, Juvenile Rheumatoid Arthritis, and Anxiety. I was always ‘the sick one’ and I began to feel very alone in my battle. I don’t want anyone else to ever feel that way. I love to meet other people with similar illnesses and I just want to let you know that you are not alone! Keep Fighting HARD!!!”

Jonna 13 years old

“Hi! I have gastroparesis, SMA Syndrome, and a feeding tube. My journey has been HARD, but my dream is make sure kids like me do not feel alone in their battles. I always had a sister that was sick and tried to help her out as much as I could, but never really understood until I got sick. Keep Fighting HARD and know that you are not alone!”

 

For more information about Fighting H.A.R.D., click here or email us.