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About Us

Fighting HARD Foundation became an official 501c3 organization in August of 2015 after we searched for a support group to help kids with rare diseases and chronic illnesses. When we were not able to find one, we decided to create an organization of our own where we could bring children of the rare disease community together to help them know they were not alone in their battle!

Get to know us and some of our story below!

Alexandra- 17 years old

Hi! I’m Allie and I have been battling many diagnoses for many years, including Crohn’s Disease, Juvenile Rheumatoid Arthritis, and a Connective Tissue Disease. Outside of Fighting H.A.R.D., I am a student in the International Baccalaureate Diploma Program (IB), am an avid language-learner and cross country/track & field runner! I founded the organization when I was just 12 years old because I want other kids with rare diseases or chronic illnesses to know they are not alone! am so excited to get to know you and I am so thankful for your support! 

Jonna- 16 years old

Hi everyone! I'm Jonna, and I have gastroparesis, a rare stomach illness. My journey has been HARD, but my dream is make sure kids like me do not feel alone in their battles. I always had a sister that was sick and tried to help her out as much as I could, but never really understood until I got sick. Keep Fighting HARD and know that you are not alone!


For more information about Fighting H.A.R.D., click here or email us.