Happy February everyone! You know what that means...it's finally RARE DISEASE MONTH! That's right folks, the best month of the year for us rare kiddos. All of the anticipation and awareness builds throughout the month, and we get to celebrate in that last week for every kid that fights HARD every single day. This month, no fighting HARD kid will be left out of our featured rockstar sport. The HARD Facts will be up here all month for everyone to read so we are representing ALL rare kids. The HARD Facts are facts about rare diseases and chronic illnesses that are research-based and truly difficult to hear a lot of the time. However, despite the fact that we battle rare diseases, rare kids are EVERYWHERE! The likelihood is we all know somebody with a rare disease- even if THEY don't know it yet!
Many of us share similar struggles with insurance, with acceptance, with treatments, stigma, lack of research and scientific knowledge, and the literal HARD facts. But at Fighting HARD, we are working to help with those struggles we face, regardless of which condition you battle!
As the NORD states, "Alone we are rare, together we are strong".
Happy rare disease month everyone! Stay tuned on our social media for important updates and ways you can help us raise awareness and funds for Fighting HARD kids everywhere!