<![CDATA[Fighting HARD Foundation - Press]]>Sat, 06 Jun 2026 15:27:25 -0700EditMySite<![CDATA[Golf Event Raising Funds For Howell Rare Illnesses Foundation]]>Thu, 18 Jul 2024 07:00:00 GMThttps://www.fightinghardfoundation.org/press/golf-event-raising-funds-for-howell-rare-illnesses-foundation
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Fighting H.A.R.D., based in Howell, is raising money for its mission of helping families faced with the challenges of rare diseases.
HOWELL, NJ — A Howell Township nonprofit that provides support to families and children fighting rare diseases is holding a benefit golf outing on July 30 to raise money for its mission.
The Fighting H.A.R.D. Foundation is hosting its 4th annual Fighting H.A.R.D. "Fore" the Kids Golf Outing, which is being sponsored by Howell P.B.A. and Hackensack Meridian Health.
Fighting H.A.R.D. Foundation is a nonprofit based in Howell and its mission is to help children with rare diseases and chronic illnesses to not feel alone. It was founded in 2015 by two sisters battling rare conditions of their own: Allie and Jonna Crocker.
The annual golf outing will be held at Pebble Creek Golf Club from 7:30 a.m. to 3:30 p.m., with a shotgun start at 9 a.m. and a luncheon afterward.
Fighting H.A.R.D. is welcoming sponsors for the event and had a few foursomes open for those who may want to join the golf outing.
]]><![CDATA[Bay Head School: Students Come Together for Children Fighting Rare Diseases]]>Tue, 28 Feb 2023 08:00:00 GMThttps://www.fightinghardfoundation.org/press/bay-head-school-students-come-together-for-children-fighting-rare-diseases
Two of our amazing Fighting H.A.R.D. kiddos are part of the Bay Head community and were featured in this Rare Disease Day news article! Bay Head School had a huge turnout in their Rare Disease Day activities, which includes a walk at the school and penny wars! Overall, they raised about $3,000 for Fighting H.A.R.D. Foundation! Thank you to all who contributed to this amazing event and for raising awareness for rare diseases and chronic illnesses! 
]]><![CDATA[NEWS12 New Jersey - Jersey Proud: Howell Nonprofit to Host Charity Run for Children with Rare Diseases]]>Mon, 27 Feb 2023 08:00:00 GMThttps://www.fightinghardfoundation.org/press/news12-new-jersey-jersey-proud-howell-nonprofit-to-host-charity-run-for-children-with-rare-diseases
The Howell-based nonprofit Fighting HARD Foundation will hold a virtual charity run on Tuesday. Runners from around the state will log in some miles for children with rare diseases. 

Thank you to our supporters at News12 New Jersey for covering this Rare Disease Day story! Read their article below:
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]]><![CDATA[Evan's Story: Deep Brain Stimulation to Treat Complex Movement Disorders]]>Wed, 29 Jun 2022 16:02:06 GMThttps://www.fightinghardfoundation.org/press/evans-story-deep-brain-stimulation-to-treat-complex-movement-disordersPicture
There was no "book" Ellen could refer to for medical guidance on her son, Evan, who has a rare genetic mutation. So, she created the book, keeping a journal on his health for most of his 12 years of life. Her insights, plus an innovative approach to therapeutic intervention from a devoted care team at Children's Hospital of Philadelphia, has led to a life-changing transformation for Evan. 
Read More
]]><![CDATA[Student Wins County Caring Award]]>Mon, 27 Jun 2022 14:20:20 GMThttps://www.fightinghardfoundation.org/press/student-wins-county-caring-award
HOWELL - Jonna Crocker, a senior at Howell High School, was one of six recipients of the 2022 Monmouth County Guidance Director Association's Caring Award.
]]><![CDATA[Here's Your Chance to Golf & Help Those Battling a Rare Disease]]>Tue, 22 Jun 2021 07:00:00 GMThttps://www.fightinghardfoundation.org/press/heres-your-chance-to-golf-help-those-battling-a-rare-disease
We are hosting a golf outing on August 10, 2021, and our friends at Townsquare Media are helping us spread the word! 
]]><![CDATA[Ocean County Assemblyman’s bill to help those with rare diseases, advances]]>Wed, 03 Feb 2021 08:00:00 GMThttps://www.fightinghardfoundation.org/press/ocean-county-assemblymans-bill-to-help-those-with-rare-diseases-advances
“Someone who is diagnosed with a rare disease shouldn’t have to jump through hoops to receive proper medical treatment."       
]]><![CDATA[Bikini and a feeding tube: How Howell teen sisters help other kids with rare diseases]]>Mon, 02 Mar 2020 08:00:00 GMThttps://www.fightinghardfoundation.org/press/bikini-and-a-feeding-tube-how-howell-teen-sisters-help-other-kids-with-rare-diseases
We had the honor to meet with Jerry Carino on Rare Your Jeans Day this year! Check out this article to see what we are up to and hear some touching stories.   
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