

February 3
Ocean County Assemblyman’s bill to help those with rare diseases, advances
“Someone who is diagnosed with a rare disease shouldn’t have to jump through hoops to receive proper medical treatment,â€
Read MoreOur mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses to know that they are not alone!
We are accomplishing our mission of helping kids with rare diseases and chronic illnesses to feel less alone by sending care packages, providing emotional support through social media and get-togethers (held virtually during COVID-19), and financially assisting these kids and their families by providing the money needed for meals, gas, groceries, and medical equipment. We are always looking for new ways to spread our message and help as many kids as possible!
At Fighting H.A.R.D., we are building a support system for kids and families who battle rare diseases and chronic illnesses. We know the struggle first-hand, and we want to create a positive, safe, and supportive environment for the rare disease community. Raising awareness in the community is absolutely crucial to our mission, and the fundraisers and events we host are all geared toward that goal of letting these kids know they are not alone! THis truly is our passion here at Fighting H.A.R.D., and we couldn't do it without our community. Thank YOU for Fighting H.A.R.D. with us!
Hey everyone! Happy March! While February might be over and Rare Disease Day has flown by, that does not mean we are stopping all of the action! This month, we would like you to meet Zoe, a very special Fighting H.A.R.D. kid with a mission to deliver positivity and kindness to everyone she meets! Zoe is our featured rockstar for this month, and we hope you will take some time to read a little bit about her and her story!
“Someone who is diagnosed with a rare disease shouldn’t have to jump through hoops to receive proper medical treatment,â€
Read MoreWe had the honor to meet with Jerry Carino on Rare Your Jeans Day this year! Check out this article to hear stories from Figh
Read MoreWe had the honor of meeting with Lou and Liz this Rare Disease Day!!! Click the link to find out about all of the Rare Your J
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