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Our Mission

Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses
to know that they are not alone!

Check out more about how we accomplish our mission here!

Mobility Isn't Always Visible: Zoe Troutman

Fighting H.A.R.D. Rockstar Zoe has created an awareness campaign featured at Point Library as part of her Girl Scout silver award! She has created an entire display that provides information about mobility and disability, specifically highlighting ambulatory wheelchair users. This is all featured with books that center disability awareness! Zoe is using this project to raise awareness for people who fight H.A.R.D. every day. The display will be there through the end of July, so be sure to stop by! If you would like to share the graphics she created, check out our shareable awareness page! Thank you, Zoe, for helping so many people know they are not alone!

The H.A.R.D. Facts

• There are over 10,000 known rare diseases
• 30 million people in the US have been diagnosed with a rare disease and over half of them are children
• 80% of rare diseases are genetic in origin
• 30% of children with a rare disease will not live to see their 5th birthday
• It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease
• 95% of rare diseases do not have an FDA-approved therapy
• There is a lack of quality information and scientific knowledge of rare diseases