Fighting H.A.R.D Foundation

Email: info@fightinghardfoundation.org

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Our Mission

Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses to know that they are not alone!

What We Do

We are accomplishing our mission of helping kids with rare diseases and chronic illnesses to feel less alone by sending care packages, providing emotional support through social media and get-togethers (held virtually during COVID-19), and financially assisting these kids and their families by providing the money needed for meals, gas, groceries, and medical equipment. We are always looking for new ways to spread our message and help as many kids as possible!

Why We Do It

At Fighting H.A.R.D., we are building a support system for kids and families who battle rare diseases and chronic illnesses. We know the struggle first-hand, and we want to create a positive, safe, and supportive environment for the rare disease community. Raising awareness in the community is absolutely crucial to our mission, and the fundraisers and events we host are all geared toward that goal of letting these kids know they are not alone! THis truly is our passion here at Fighting H.A.R.D., and we couldn't do it without our community. Thank YOU for Fighting H.A.R.D. with us!

Did You Know?

There are over 7,000 known rare diseases in the United States
30 million people in the US have been diagnosed with a rare disease and over half of them are children
80% of rare diseases are genetic in origin
30% of children with a rare disease will not live to see their 5th birthday
It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease
There is a lack of quality information and scientific knowledge of rare diseases

Featured Rockstar!

Meet Kelly!

Hi everyone, Happy May! This month, we want you to meet Kelly! Kelly is an incredible girl with the most contagious smile out there. Kelly has PACS1, an extremely rare neuro-genetic disorder. Kelly was the 14th person in the world to be diagnosed and she is 1 in 48,878,000! There are many obstacles that kids with PACS1 face that can include (but are not limited to) global developmental delays, intellectual disabilities, epilepsy, autism, and language impairments.