Our Mission

Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses
​to know that they are not alone!

Check out more about how we accomplish our mission here!

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The H.A.R.D. Facts

• There are over 7,000 known rare diseases in the United States
• 30 million people in the US have been diagnosed with a rare disease and over half of them are children
• 80% of rare diseases are genetic in origin
• 30% of children with a rare disease will not live to see their 5th birthday
• It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease
• ​There is a lack of quality information and scientific knowledge of rare diseases