

October 11
NJ Mom Fights for Daughter with Rare Condition, Authors Bill
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Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses to know that they are not alone!
We are accomplishing our mission of helping kids with rare diseases and chronic illnesses to feel less alone by sending care packages, providing emotional support through social media and get-togethers (held virtually during COVID-19), and financially assisting these kids and their families by providing the money needed for meals, gas, groceries, and medical equipment. We are always looking for new ways to spread our message and help as many kids as possible!
At Fighting H.A.R.D., we are building a support system for kids and families who battle rare diseases and chronic illnesses. We know the struggle first-hand, and we want to create a positive, safe, and supportive environment for the rare disease community. Raising awareness in the community is absolutely crucial to our mission, and the fundraisers and events we host are all geared toward that goal of letting these kids know they are not alone! This truly is our passion here at Fighting H.A.R.D., and we couldn't do it without our community. Thank YOU for Fighting H.A.R.D. with us!
Hey everyone! We have a new Featured Rockstar for you to meet! Evan is an amazing kiddo who Fights H.A.R.D. every day! Evan has an extremely rare genetic condition associated with RPL10. There is very little research on this condition, but you will never see Evan without a smile on his face!
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We are hosting a golf outing on August 10, 2021, and our friends at Townsquare Media are helping us spread the word!
Read More“Someone who is diagnosed with a rare disease shouldn’t have to jump through hoops to receive proper medical treatment,â€
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