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Our Mission

Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses
to know that they are not alone!

Check out more about how we accomplish our mission here!

Current and Upcoming Events

Panera Get-Together

We’re raising dough at Panera on January 7th, 2025! We hope you will join us — whether you are a Fighting H.A.R.D. Family looking to socialize with our rare community or a supporter looking for a meal that night, we are so excited to see you there to raise some awareness and funds as we dive into the new year!

Rare Disease Day 2025

Stay tuned for announcements about the biggest and best day of the year: Rare Disease Day! Coming soon!

The H.A.R.D. Facts

• There are over 7,000 known rare diseases in the United States
• 30 million people in the US have been diagnosed with a rare disease and over half of them are children
• 80% of rare diseases are genetic in origin
• 30% of children with a rare disease will not live to see their 5th birthday
• It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease
• There is a lack of quality information and scientific knowledge of rare diseases