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Celebrating 10 Years of Fighting H.A.R.D.!

Our Mission

Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses
to know that they are not alone!

Check out more about how we accomplish our mission here!

Upcoming Events

Order Apparel Today!

Our wonderful friends at Shore Apparel have created an apparel sale for Feeding Tube Awareness Week (2/1/26-2/7/26) and Rare Disease Month (February!)! Check out the link and get your order in today or share with others who may want to support! If you are unable to purchase one for your child due to financial difficulties, but would still like to get one, please don’t hesitate to let us know and we will order for you.

Visit the Shop!

The H.A.R.D. Facts

• There are over 10,000 known rare diseases
• 30 million people in the US have been diagnosed with a rare disease and over half of them are children
• 80% of rare diseases are genetic in origin
• 30% of children with a rare disease will not live to see their 5th birthday
• It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease
• 95% of rare diseases do not have an FDA-approved therapy
• There is a lack of quality information and scientific knowledge of rare diseases