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Celebrating 10 Years of Fighting H.A.R.D.!

Our Mission

Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses
to know that they are not alone!

Check out more about how we accomplish our mission here!

Holiday Smiles & Amazon Wishlist!

Happy Holidays from Fighting H.A.R.D. Foundation! Our Holiday Smiles program helps to provide holiday dinners, gift cars, medical supplies, surprises, and more in loving memory of Fighting H.A.R.D. rockstar Marc W. You can make a contribution using the QR code on our flyer or through Venmo @FighitngHARDpays, Make sure you leave a note that the donation is for Holiday Smiles! Another way to give this season is to contribute to our Amazon wishlist as we are providing full holidays for a few Fighting H.A.R.D. families in need! You can visit and shop using the button below!

See The Wishlist Here

The H.A.R.D. Facts

• There are over 10,000 known rare diseases
• 30 million people in the US have been diagnosed with a rare disease and over half of them are children
• 80% of rare diseases are genetic in origin
• 30% of children with a rare disease will not live to see their 5th birthday
• It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease
• 95% of rare diseases do not have an FDA-approved therapy
• There is a lack of quality information and scientific knowledge of rare diseases