Our Mission

Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses
​to know that they are not alone!

Check out more about how we accomplish our mission here!

Upcoming Events

We hope you will join us for some outdoor fun and help us to raise some awareness and funds for kids Fighting H.A.R.D.!

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A Day at the Ballpark!

On May 21st, we held a Fighting H.A.R.D. get-together at the Jersey Shore BlueClaws stadium! It was a great day at the ballpark where Fighting H.A.R.D. kids and families alike were able to connect with each other and have some fun! Thank you for supporting our foundation and helping us have events like these for Fighting H.A.R.D. Families to know they are not alone! Check out some of the pictures!

The H.A.R.D. Facts

• There are over 7,000 known rare diseases in the United States
• 30 million people in the US have been diagnosed with a rare disease and over half of them are children
• 80% of rare diseases are genetic in origin
• 30% of children with a rare disease will not live to see their 5th birthday
• It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease
• ​There is a lack of quality information and scientific knowledge of rare diseases