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Our Mission
Our mission at Fighting H.A.R.D. Foundation is to help children with rare diseases and chronic illnesses
to know that they are not alone!
to know that they are not alone!
The H.A.R.D. Facts• There are over 10,000 known rare diseases
• 30 million people in the US have been diagnosed with a rare disease and over half of them are children • 80% of rare diseases are genetic in origin • 30% of children with a rare disease will not live to see their 5th birthday • It takes an average of 8 years and 10 specialists to receive an accurate diagnosis of a rare disease • 95% of rare diseases do not have an FDA-approved therapy • There is a lack of quality information and scientific knowledge of rare diseases |