​​About Us

​​Fighting HARD Foundation became an official 501c3 organization in August of 2015 after we searched for a support group to help kids with rare diseases and chronic illnesses. When we were not able to find one, we decided to create an organization of our own where we could bring children of the rare disease community together to help them know they were not alone in their battle!

​​​Alexandra- 

Hi! My name is Allie and I am one of the founders of Fighting H.A.R.D. Foundation, alongside my sister Jonna. I have been Fighting HARD since childhood and my experiences sparked a passion for helping others who deal with similar struggles. Outside of Fighting H.A.R.D., I am a senior at Franklin & Marshall College where I am a Public Health/Government major, an RA,, and a member of my House Government! Jonna and I founded the organization because we want other kids with rare diseases or chronic illnesses to know they are not alone, so we thank you for visiting this site and Fighting HARD with us to accomplish our mission!

​​Jonna-

Hello everyone! My name is Jonna, and I am the co-founder of Fighting H.A.R.D. Foundation! Having first-hand experience with the rare disease life, it is my mission to ensure other kids who battle rare diseases never feel alone in their journeys. Outside of the foundation, I am a junior at Cornell University, where I am pursuing a degree in Applied Economics and Management through the Dyson School. I want to personally thank you for visiting our website and hope that you will continue to support our mission!

For more information about Fighting H.A.R.D., click here or email us.