Watch This Video From The Rare Disease Day 2024 Fireside Chat!
We held our first ever Fireside Chat this past Rare Disease Day! It was an amazing event with even more amazing panelists. Check out the video below to see the highlights! Thank you to everyone who attended and came together to make this day a huge success!
We had some of the top leaders in healthcare and policy there to discuss rare diseases and how we can make positive change for our rare kiddos and families. Leading experts, rare disease warriors and caregivers, and advocates all joining together for real change!