Fighting H.A.R.D. Events

Fighting H.A.R.D. Events are a great way for us to raise awareness and funds for children battling rare diseases! It's also a great opportunity for Fighting H.A.R.D. Families to meet and connect with one another. We hold our Fighting H.A.R.D. "Fore" the Kids Golf Outing, Clothing Drive, and Run HARD for Rare Kids events annually, and we hold virtual support groups and game nights regularly! I Make sure you check out our upcoming events to see what you can get involved in!

Our Annual & Upcoming Events
Check out the list below and keep an eye out for more information!

​​Annual Events
Run HARD for Rare Kids
Rare Disease Day Festivities
Martell's Music Fest
Clothing Drive
Spring Smiles
Scholarship Program
Beach Day
Fighting HARD "Fore" the Kids Golf Outing
September Smiles
Holiday Gift Drive for Hospitals
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 Teen Support Groups:

Our meetings are being held on Zoom on the 3rd Sunday of every month! Stay tuned for updates on our next meeting!

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Rarent Support Groups:

Stay tuned for updates on our next Rarent Support Group meeting!

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