NEWS12 New Jersey - Jersey Proud: Howell Nonprofit to Host Charity Run for Children with Rare Diseases
There was no "book" Ellen could refer to for medical guidance on her son, Evan, who has a rare genetic mutation. So, she created the book, keeping a journal on his health for most of his 12 years of life. Her insights, plus an innovative approach to therapeutic intervention from a devoted care team at Children's Hospital of Philadelphia, has led to a life-changing transformation for Evan.
Student Wins County Caring Award
Bikini and a feeding tube: How Howell teen sisters help other kids with rare diseases